AngelM
Member
- Time of past OR future Camino
- (2016)
Has anyone done the walk with systemic autoimmune diseases? Did you flare?
I am wanting to do my first walk in 2016 and the only thing that keeps me from hopping on a plane and going now (ok maybe waiting and hopping a plane in May of THIS year) is my fear about my body not holding up to the walk.
I have Ankylosing Spondylitis, Sjogrens, and SLE with Antiphospholipid Syndrome.
I have fusion of the SI joints in my pelvis, some of the joints in my spine, and bad deterioration of my hips, knees. When I flare I get costsochondritis. I have chronic sinus/throat/respiratory issues from the Sjogrens.
I am in pain every day, and often need a cane or a walker because I fall. I need a lot of medicine.
However, I can get those trekking poles, I can go slowly, I can bring my medicine, I can at least try and see what happens right?
What have been your experiences?
I am wanting to do my first walk in 2016 and the only thing that keeps me from hopping on a plane and going now (ok maybe waiting and hopping a plane in May of THIS year) is my fear about my body not holding up to the walk.
I have Ankylosing Spondylitis, Sjogrens, and SLE with Antiphospholipid Syndrome.
I have fusion of the SI joints in my pelvis, some of the joints in my spine, and bad deterioration of my hips, knees. When I flare I get costsochondritis. I have chronic sinus/throat/respiratory issues from the Sjogrens.
I am in pain every day, and often need a cane or a walker because I fall. I need a lot of medicine.
However, I can get those trekking poles, I can go slowly, I can bring my medicine, I can at least try and see what happens right?
What have been your experiences?