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  1. AngelM

    Autoimmune disease

    Hi Janet! The sun! You know at home I am diligent about the sun but I really don't know how to handle it on for something like this. I was planning on sunscreen and hats - the clothing idea is fabulous! I need to look that up! As for stopping mid-day, it sounds like there are a lot of places to...
  2. AngelM

    Autoimmune disease

    It does help! Thank you! I am really encouraged by all these replies.
  3. AngelM

    Autoimmune disease

    Thank you Anenome for this great advice!
  4. AngelM

    Autoimmune disease

    I would love it if he did join me! He would really enjoy this too I think, but I'm not sure of we can make it happen, and he hasn't expressed any interest at all in going. I think it's really odd, because he likes to go hiking and stuff, but this seems to not be grabbing him like it is me. We...
  5. AngelM

    Autoimmune disease

    What a beautiful offer, and thank you for the encouragement. :)
  6. AngelM

    Autoimmune disease

    I just want to say thank you again to all of you, and especially normandog for sharing this lovely story. You've really inspired me and made me feel like I can do this. When my husband asked me (again) "so you really think you could do this?" I replied "I don't think I can, I am telling you...
  7. AngelM

    Multiple Medications - Filling & Carrying on Camino Frances

    So. I normally get pills 90 days a time too, but I also travel quite often. So what I've done is asked my pharmacy to send me small bottles. Also, I take some medication that is toxic and other people aren't supposed to touch, so those come in pill booklets in those blister packs. Those are...
  8. AngelM

    Multiple Medications - Filling & Carrying on Camino Frances

    Great question. When will you be walking? I have a different disease, but also on Remicade and take a slew of drugs for autoimmune conditions. I plan on taking my pills in their pharmacy containers with pharmacy labels, and a letterhead signed list from each prescribing doctor listing what they...
  9. AngelM

    Autoimmune disease

    So were you guys on immune suppressing drugs at the time of your Camino? Did you stay in albergues? Did you have any trouble with sickness or infection? I'm wondering if I should plan on staying I private rooms, or if I will be ok? I can't stop the immune suppressants because before them I...
  10. AngelM

    Autoimmune disease

    Thank you everyone! I am so glad go know that so many of you have done this! I will not be afraid! I don't mind if I need to have a rest, or use a bus or a cab, or whatever. I need to find these poles for sure. This will take extra planning for sure, but I think I can do this. My...
  11. AngelM

    Autoimmune disease

    Has anyone done the walk with systemic autoimmune diseases? Did you flare? I am wanting to do my first walk in 2016 and the only thing that keeps me from hopping on a plane and going now (ok maybe waiting and hopping a plane in May of THIS year) is my fear about my body not holding up to the...
  12. AngelM

    Set backs, How in shape do I need to be?

    Thank you for asking this question! I am brand new here (my first post) and it would seem your Camino walk should have just occurred this fall if you were able. How did things turn out? I appreciate your asking the question, and everyone's answers. I am "a little" disabled by systemic medical...

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