gittiharre
Veteran Member
- Time of past OR future Camino
- 2022 Camino Portuguese and Primitivo
For 2024 Pilgrims: €50,- donation = 1 year with no ads on the forum + 90% off any 2024 Guide. More here. (Discount code sent to you by Private Message after your donation) |
---|
I'm so sorry to hear this, Gitti. Sometimes the trials that come our way are incomprehensible. I pray that you and your family will be granted the courage, strength and grace to face these difficulties.
Much love, Charleen
Well dear forumfriends I am in shock. In the middle of planning my next walk om the Via Baltica and Via Scandinavica next July, flight booked and I am diagnosed with High Grade Papillary Cancer of the bladder, non muscle invasive at this point, but high risk of recurrence and progression into the bladder wall and spread to other organs and subsequent death. The treatment of BCG infusions into the bladder is highly toxic and coupled with 3 monthly invasive checks my life will never be the same.
I am overwhelmed right now. My husband is 82, I am only 59 and our young daughter and her little baby girl need me to be around while she gets herself through university. I am the sole income earnner in our house and I am scared that I will not be able to continue to work even once the treatments start
I amt rying really hard to adopt the mindset one gets into during camino walks, the one step at a time thing and trusting that things will work out for the best, but so far I am still practising that one!
Well, I will be extremely grateful if I can do my next walk as planned, it gives me a goal at least.
Not sure if this kind of post fits into this forum, but I have been part of this for a few years now and you guys are part of my community.
Love Gitti
Dear Gitti, your physical situation is awful, but your family still plays a major purpose in your life. Little time left for your daughter and her baby to see mother and grandma. List your priorities, your chances of "pulling it off" with a happy return, and leave the rest in the hands of our Creator. A difficult decision![...] Not sure if this kind of post fits into this forum, but I have been part of this for a few years now and you guys are part of my community.
Rachael, how sweet of you. At the moment I feel ridiculously well, no one would think I am dealing with what I am dealing with, but a time may come when I will really need some practical help and you are amazing to offer it, when you are so busy with a big family. My husband is going away for a couple of weeks from Monday and may be we could just have a cup of tea together and share some Camino stories. I am thinking of doing a fundraiser walk for bladder cancer research if I can get it together, and using the planned Via Baltica/Scandinavica route for this next year. I know you have some experience with fundraising. My phone no is [phone number deleted by Moderator - please use Personal Messages so as to protect personal information]Dear Gitti
This is hard news to accept. Thanks for sharing with us. You have already received encouragement and prayers form the community here - now I would like to offer to be the hands and feet. I live in the same city and would be honoured to help out practically. My experience is that actual suggestions are better than vague "let me know how I can help" type offers - please do not be hesitant to accept what we as a community can give you. Would some meals help? Especially (but not exclusively) when treatment starts. Do you have any dietary restrictions? How about hand-me-downs for your grandchild?
Could others chip in with other ideas?
Feeling for you and wanting to extend grace to you.
Thank you Rebekah, one of my bucket list walks is the Madrid route followed by the Invierno as well as the Voie de Piemont...always planned to call on you at the end of the Madrid route, so lets work towards that.Dear Gitti, What awful news! Please remember you never walk that path alone.
A candle burns for you on the camino.
Reb
Thanks Ivar, the forum is just wonderful and you are doing an amazing job to keep it going. It has been a great source of inspiration and support for my various walks over the last few years and I still have a few on my bucket list!I am really sorry to hear this Gitti. I hope this community can help you get through this.
A huge hug from Santiago,
Ivar
Gitti,Well dear forumfriends I am in shock. In the middle of planning my next walk om the Via Baltica and Via Scandinavica next July, flight booked and I am diagnosed with High Grade Papillary Cancer of the bladder, non muscle invasive at this point, but high risk of recurrence and progression into the bladder wall and spread to other organs and subsequent death. The treatment of BCG infusions into the bladder is highly toxic and coupled with 3 monthly invasive checks my life will never be the same.
I am overwhelmed right now. My husband is 82, I am only 59 and our young daughter and her little baby girl need me to be around while she gets herself through university. I am the sole income earnner in our house and I am scared that I will not be able to continue to work even once the treatments start
I amt rying really hard to adopt the mindset one gets into during camino walks, the one step at a time thing and trusting that things will work out for the best, but so far I am still practising that one!
Well, I will be extremely grateful if I can do my next walk as planned, it gives me a goal at least.
Not sure if this kind of post fits into this forum, but I have been part of this for a few years now and you guys are part of my community.
Love Gitti
Much as gracias Amancio, I remember you well from that beautiful evening in Bercianos. Abrazo GittiDear friend, we met once in Bercianos 8 years ago, I am also shocked to hear these news, keep strong and have faith in everything turning our all right, as well as about your family, do think of yourself and take lots of care, the thought of your next Camino will act as a good incentive to keep you going!
Un abrazo desde Granada!!!!
Rachael, how sweet of you. At the moment I feel ridiculously well, no one would think I am dealing with what I am dealing with, but a time may come when I will really need some practical help and you are amazing to offer it, when you are so busy with a big family. My husband is going away for a couple of weeks from Monday and may be we could just have a cup of tea together and share some Camino stories. I am thinking of doing a fundraiser walk for bladder cancer research if I can get it together, and using the planned Via Baltica/Scandinavica route for this next year. I know you have some experience with fundraising. My phone no is [deleted]
Dear Gitti....I am so very, very sorry to read of your diagnosis.....my thoughts and my prayers are both with you and your family.....you have such much love and support coming from this group. A big, but gentle hug from a fellow Perigrina.....Well dear forumfriends I am in shock. In the middle of planning my next walk om the Via Baltica and Via Scandinavica next July, flight booked and I am diagnosed with High Grade Papillary Cancer of the bladder, non muscle invasive at this point, but high risk of recurrence and progression into the bladder wall and spread to other organs and subsequent death. The treatment of BCG infusions into the bladder is highly toxic and coupled with 3 monthly invasive checks my life will never be the same.
I am overwhelmed right now. My husband is 82, I am only 59 and our young daughter and her little baby girl need me to be around while she gets herself through university. I am the sole income earnner in our house and I am scared that I will not be able to continue to work even once the treatments start
I amt rying really hard to adopt the mindset one gets into during camino walks, the one step at a time thing and trusting that things will work out for the best, but so far I am still practising that one!
Well, I will be extremely grateful if I can do my next walk as planned, it gives me a goal at least.
Not sure if this kind of post fits into this forum, but I have been part of this for a few years now and you guys are part of my community.
Love Gitti
Thanks very much Rachael. I will be at work most evenings this week, except Wednesday, so Wed would be great. GittiGitti
I am heading out this evening to help a friend with a uni assignment, but tomorrow night I will call you - probably about 8pm once little kids are settled.
Thank you so much music man for your openness it is immensely reassuring to hear that there is life after this upcoming ordeal and I hope everything will work out for me. I will read your blog. Much love. You are an inspiration.Gitti, Earlier this year I had to cancel my Caminho from Seville because of two months' Chemo- therapy, follow in July by the removal o my bladder, Prostate and Appendix - miraculously by keyhole surgery.
I now live with a Stoma, quite equably!
Like you I was stunned by the diagnosis of invasive cancer.
4 1/2 months after surgery I am feeling well and am increasingly active; most importantly am planning the Seville to Caceres stage of the Via de la Plata for next April.
I kept my blog going for this Cancer Caminho:-http://ensuitepilgrimblog.wordpress.com/
PS Iam 68 years young.
I hope that my experience encourages you to remain positive and expect the best possible outcomes.
Best,
Musicman
I love your mum's saying!Dear Gitti,
I can't think of a more appropriate place for you to share your news than with your kind hearted fellow peregrinos on this good Forum.
My dear old Mum had many lovely old Irish sayings and one that always stuck with me was :
'God never sends you down a rocky path unless he's sure you have a strong pair of boots' (kind of appropriate for this Forum!)
Be assured that you are genuinely held in all our thoughts and I'm sure you will find that strength to tackle the journey ahead .
Go n'eiri an bothar leat .
Peadar
Thank you dear Margaret.Gitti, really sorry to read your news. I know your treatment will be difficult, but I hope your body responds well to it. I will make sure Rom and Aideen know- and I know Rom will light some candles for you in the Abbey in Moissac.
Margaret
I love your mum's quote and I am telling myself that whilst I cannot control the outcome of this I can manage my emotional response and focus on daily quality of life and that is what I will do and how I will be.Dear Gitti,
I can't think of a more appropriate place for you to share your news than with your kind hearted fellow peregrinos on this good Forum.
My dear old Mum had many lovely old Irish sayings and one that always stuck with me was :
'God never sends you down a rocky path unless he's sure you have a strong pair of boots' (kind of appropriate for this Forum!)
Be assured that you are genuinely held in all our thoughts and I'm sure you will find that strength to tackle the journey ahead .
Go n'eiri an bothar leat .
Peadar
Well dear forumfriends I am in shock. In the middle of planning my next walk om the Via Baltica and Via Scandinavica next July, flight booked and I am diagnosed with High Grade Papillary Cancer of the bladder, non muscle invasive at this point, but high risk of recurrence and progression into the bladder wall and spread to other organs and subsequent death. The treatment of BCG infusions into the bladder is highly toxic and coupled with 3 monthly invasive checks my life will never be the same.
I am overwhelmed right now. My husband is 82, I am only 59 and our young daughter and her little baby girl need me to be around while she gets herself through university. I am the sole income earnner in our house and I am scared that I will not be able to continue to work even once the treatments start
I amt rying really hard to adopt the mindset one gets into during camino walks, the one step at a time thing and trusting that things will work out for the best, but so far I am still practising that one!
Well, I will be extremely grateful if I can do my next walk as planned, it gives me a goal at least.
Not sure if this kind of post fits into this forum, but I have been part of this for a few years now and you guys are part of my community.
Love Gitti
I love your mum's quote and I am telling myself that whilst I cannot control the outcome of this I can manage my emotional response and focus on daily quality of life and that is what I will do and how I will be.
No need to say a thing. Thank you for being aware of my concern.Gitti, big hug. Don't know what to say...
The manufacturing issue seems to be a mold issue that occurred 2 years ago, according to an article in Forbes 10/16/14 - who also points to price gauging for the other less effective medicine since the BCG shortage. You make some very excellent points . It is most definitely disturbing on so many levels. If you are interested in that article, I'll send it when I find it again. Did you get your full dose today?Here is a link to my interview with Radio New Zealand National Programme yesterday on the topic of the impact of the BCG shortage:
http://rnz.to/1GMVkjH
Exactly - the voice, so calm, so tender, so warm...You spoke eloquently Gitti and it gave me a warm feeling inside to connect your voice to your picture. I pray that you will receive a full course of treatment tomorrow and that protocol will be closely monitored. You are a strong spokesperson for this crisis. God Bless!
I'm sorry to hear this, Gitti. I've sent you a private message. PatUpdate: No I did not get full dose today. Hardly any inflammation in the bladder, I strongly suspect the dose is below the therapeutic level. In any case women respond less well to treatment than men...now it looks like there will be supply issues well into 2016! The story changes every day!
This must be so frustrating for you Gitti! I pray that, on the eve of Our Saviour's birth, a deep sense of peace will fill you and your family so that you can celebrate together the wonderful spirit of Christmas...sending hugs from CanadaUpdate: No I did not get full dose today. Hardly any inflammation in the bladder, I strongly suspect the dose is below the therapeutic level. In any case women respond less well to treatment than men...now it looks like there will be supply issues well into 2016! The story changes every day!
THANK you Seque. Last dose yesterday for now. Got 90 per cent of a vial and my radio interview resulted in 300 extra vials getting delivered to nz. Great result. Time to chill with family now. Lots of love for xmas GittiThis must be so frustrating for you Gitti! I pray that, on the eve of Our Saviour's birth, a deep sense of peace will fill you and your family so that you can celebrate together the wonderful spirit of Christmas...sending hugs from Canada
Well done Gitti.....my radio interview resulted in 300 extra vials getting delivered to nz. Great result.....
Well dear forumfriends I am in shock. In the middle of planning my next walk om the Via Baltica and Via Scandinavica next July, flight booked and I am diagnosed with High Grade Papillary Cancer of the bladder, non muscle invasive at this point, but high risk of recurrence and progression into the bladder wall and spread to other organs and subsequent death. The treatment of BCG infusions into the bladder is highly toxic and coupled with 3 monthly invasive checks my life will never be the same.
I am overwhelmed right now. My husband is 82, I am only 59 and our young daughter and her little baby girl need me to be around while she gets herself through university. I am the sole income earnner in our house and I am scared that I will not be able to continue to work even once the treatments start
I amt rying really hard to adopt the mindset one gets into during camino walks, the one step at a time thing and trusting that things will work out for the best, but so far I am still practising that one!
Well, I will be extremely grateful if I can do my next walk as planned, it gives me a goal at least.
Not sure if this kind of post fits into this forum, but I have been part of this for a few years now and you guys are part of my community.
Love Gitti
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?